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Global News Exclusive: Maritimers leading the way in organ donor registration

It could be the ultimate gift: Signing up to be an organ donor can save dozens of lives. When it comes to making that commitment, Maritimers are leading the way.
It could be the ultimate gift: Signing up to be an organ donor can save dozens of lives. When it comes to making that commitment, Maritimers are leading the way.

It could be the ultimate gift: Signing up to be an organ donor can save dozens of lives.

When it comes to making that commitment, Maritimers are leading the way.

Based on data obtained through Access to Information requests, globalnews.ca has created an interactive map showing the percentage of Nova Scotia and New Brunswick residents on the organ donor registry.

Nearly half of Nova Scotians are registered, the highest number in the country.

While New Brunswick is behind its neighbour, with 38 per cent,  it's way ahead of much larger provinces.

British Columbia has 19 per cent of its population signed up; Ontario has only 16 per cent.

In fact, in parts of Toronto donor registration is under  five per cent.

The medical director for Nova Scotia's organ donation program says the numbers are promising, but numbers aren't everything.

"The real number that matters is how many actual donors do we have per year," Dr. Stephen Beed says.

"The percent that said they would be a donor if tragedy befell them is important to focus on, but the real system issue relates to how many actual donors do we get?

In order to qualify as a donor, a person has to die from a very specific type of neurological injury and of the approximately 4,000 deaths in the province each year, only about 30 people qualify.

Pat Demolitor is a nurse in Bridgewater, N.S. who has seen firsthand the difference organ donation can make, but it wasn't a patient of hers who gave the gift of life.

Her son, Simon, collapsed in class from a brain aneurism seven years ago.

The healthy 19-year-old's organs and tissue helped 42 people: his corneas went to a child who would otherwise not be able to see; his skin tissue to a burn victim; his heart to a man already preparing for death.

"All that kept going through my mind was I certainly don't want to see all those tissues and organs wasted, Demolitor says. "That would be a crime."

She says Simon registering to be an organ donor had an impact on more than just the recipients and their families.

Demolitor says several people have told her they signed to be an organ donor because of Simon. 

Donor numbers higher in urban areas  

Even with some of the highest rates of organ donor registration in the country, the concentration of potential donors is highest around Halifax.

Based on census data obtained through Access to Information, Global News discovered communities in Halifax Regional Municipality had the biggest concentration of people signed up to be donors of the two provinces.

(View the interactive map below, breaking down the rates by postal code)  

In downtown Halifax (postal code B3J) 51 per cent of residents said are registered and across the harbour nearly 70 per cent of the people living in Dartmouth (postal code B3B) have made the commitment.

But, that number drops significantly as you head out of the region.

A few hours drive down the 103 to the South Shore (postal code B0T) the number drops to 40 per cent.

Legacy of Life was formed in 2006 in hopes of raising donor registration numbers around the province, outside of HRM.

The organization's program manager, Corinne Corning, says education and promotion are just one part of the process.

"Most people aren't really aware that the opportunity to be able to donate is actually very small in relation to the number of people who die," she says.

It's about one to three per cent of patients who are eligible and they have to have suffered significant brain injuries and be on life support in order for their organs to be donated.

But there is hope no eligible donor will be overlooked, Corning assures.

A new provincial act could be proclaimed in the spring of 2012, streamlining the referral process to make sure no potential donors are missed.

"What that will do is make sure that all of the hospitals have that process in place to refer every potential donor," she explains.  

*With files from Rebecca Lau and Patrick Cain

 Percentage of residents on an organ donor registry
 

Over 60% 55-60% 50-55% 45-50% 40-45% Under 40% 

Interactive map by Patrick Cain

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